The aim of this website is to provide you with as much information as possible, so that you can perhaps get some comfort that others have experienced similar issues, and importantly get help to tackle them. If you are having difficulty with getting support for you or your child (and family), then we hope to provide points of contact.
Our contact details:
Everything is confidential and will be treated with respect. If we don’t have an answer, we will try and point you in the right direction.
We here at this website have been through hoops and over hurdles, many times falling over with the huge pressures that parenting a child with differences brings, but importantly, we have dusted ourselves down, picked ourselves up and found other ways to overcome the barriers.
Please feel free to share your experiences of FHS and if you can help other parents or professionals with information, this can only benefit children of the future who are diagnosed with this syndrome.
Contact a Family is a national charity for families with disabled children.
We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society. Free Helpline is 0808 808 3555
New Forum launched June 2017
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